This post was originally posted as a guest blog on Scarymommy.com
My house is a complete disaster. There are dishes to be done, laundry to
put away and a million things to do before the first day of school
which happens to be tomorrow. And here I sit, feeling guilty about
taking time to explore my feelings. Guilt is a feeling I am quite
familiar with lately. Maybe that is normal when your husband has a brain
tumor, not sure since this is all new to me.
Lately I have been guilty more than anything else. I feel guilty for all
the fights we had over the last year for things, it turns out, my
husband couldn’t control. I feel guilty for still getting angry at him
even though I know he probably still can’t control it, not to mention
all the stress that he is under. I feel guilty that our children have to
deal with something so big when they should just be enjoying their
childhoods. I feel guilty for letting my house go to shit. I feel guilty
for not being more vigilant about my husband’s diet (and let’s face it –
mine and the kids). I feel guilty for getting angry at how this has all
changed my life. I feel guilty. And that’s okay, because as a woman and
a mom, I am very familiar with this feeling. It’s all the other crap
feelings that I can’t quite get my arms around.
My husband had been having headaches. We didn’t think anything of it.
Sometimes he felt dizzy or unbalanced. We self-diagnosed that he had a
sinus infection. Our doctor agreed and put him on antibiotics. Some days
he would come home from work and go to bed. I got angry. I didn’t get
to go to bed when I had a headache. Buck up buddy! (I, of course, did
not say this and instead suffered in silence and let it stew.) The
Thursday we found out started like any other day. We had a long to-do
list that included packing for my husband’s high school reunion that
weekend, football practice and a follow-up doctor’s appointment because
the meds she put him on weren’t working (cause dah, he did not have a
sinus infection). The doctor’s appointment led to an MRI scheduled for
9:30 pm that night. We were still planning on going to the reunion, so
sure the MRI would show nothing. And then the phone rang at 11:15 pm, 5
minutes after we got home. And life as we knew it would never be the
same.
In less than a week, we would be in and out of the hospital twice (two
different hospitals) including a four hour brain surgery. (Yup, they
drilled two holes in my husband’s skull and then used a jigsaw.) We
would learn things about the brain and tumors we never hoped to know. I
would have to buzz my husband’s hair since the haircut the surgeons left
him with was a bad reverse Mohawk. I found a whole new use for
reminders on my phone, to tell us when he needed his medicine. Our
Facebook pages lit up with wishes from people we hadn’t talked to in 10
years and even from people we didn’t know. Family came to visit and help
with the kids. Friends stopped by to say hello and bring food (wishing
that part didn’t end ). It was a crazy, whirlwind of activity which left
little time to think about the hard truth of the situation. And then
all the motion stopped and what was left was real life. Because no
matter how much you wish it would, life does not stop for your husband’s
brain tumor. Life goes on.
The hardest part of all this has been trying to continue on with our
lives. We have four boys ages 4 to 14 and they are very active. We have
football and sleepovers and back to school shopping. And of course, they
actually want to eat from time to time which involves grocery shopping
and cooking. The kids have been trying to be good, but they are kids and
there are still fights. There is laundry and cleaning and doctor’s
appointments. And all of this must go on while my husband still has a
tumor on the other side of his brain which can’t be operated on. I am
overwhelmed to say the least and when it gets too much to handle, I feel
guilty about that too because my poor husband is the one actually going
through all of this. He is my best friend and I share everything it
him, but I do not want to add to his burden by telling him how hard this
is on me. He is starting to get out and about more because I think
sitting in the recliner all day is driving him nuts. And so he is going
to play golf. And I feel guilty because I am angry that he gets to play
golf while I work, clean the house (sometimes), cart the kids everywhere
and remember all the doctor’s appointments. Have fun honey, ahhhhhhhhh!
What I have come to understand is that the trauma of the diagnosis and
even the surgery was hard, but finding the strength to go on with life
is even harder. I know that people go through their own personal battles
every day and I applaud them for all their hard work. If anyone has any
secrets to not losing their shit along the way, I am all ears.
May the force be with you, I am certainly hoping it is on our side.
Unfortunately i feel your pain and your "guilt". Not to give a long drawn out story, but my husband had cancer, and i know what you mean. I always feel guilt anyway, that im not doing enough with the boys, that im not going back to school for my masters, that im not this or that. Its hard to be supermom anymore. Try not to feel so guilty b.c you are after all, taking care of alot of people and probably not yourself as much. Hugs. write me if you need!
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